The paperwork was
signed and sent off to the state of New York to have me declared legally blind
yesterday. I’m still trying to figure out how I feel about it. On the one hand
I’m happy because it means that I now have people who are not only trying to
find the cause of my blindness but are working to make sure that while I endure
this trial that I am taken care of on all fronts.
I have a fucking
awesome medical care team now, whereas I didn’t have one before.
On the other hand, this
makes it official. It’s like it’s real now. Not that it wasn’t before. I mean,
you can only wake up blind so many times before you realize that it’s now a
major part of your life. But I’m now realizing that my life is very drastically
changed and it’s stressing me out and my sister, Cherie, who is like the
world’s greatest big sister and who is helping to take care of me, in spite of
the fact that it’s stressing her out so much.
Now I really am blind.
Now doctors are acknowledging it and the State of New York is going to be
acknowledging it and, oh shit, I’m fucking BLIND!
That was pretty much my
thought process last night, but in the middle of the night my phone rang and it
was a dear friend of mine whom I’ve known since my freshman year of high
school. He was calling to check up on me and when I told him where my head was
at, he sort of chuckled and reminded me that I’d been blind before they acknowledged
it. And then like a bolt of lightning he got all wise and shit on me:
A: You know, you do
that a lot.
V: Do what?
A: Don’t believe that
something is true until someone else acknowledges it for you. Actually, until a
bunch of people acknowledge it.
V: What? What does that
even mean?
A: Remember when you
made the Dean’s List back at Southeastern? You carried the letter around with
you everywhere and people thought it was because you wanted to brag but it was
because you needed to have other people confirm it for you before you would
believe it.
V: That’s not true.
It’s because I’m an arrogant, self centered bastard and I need everyone to
acknowledge my greatness.
A: No, it’s because you
need people to acknowledge you period.
V: Ouch.
A: It’s the truth. You’ve
been walking around for almost three weeks completely blind, fighting off
depression, trying to still be yourself and trying not to be a burden on
everyone and it wasn’t until a doctor or two confirmed that you were blind that
you finally accepted it? I bet you’re still not believing and accepting that
you’re a bestseller on Arizona or whatever.
V: Amazon.
A: That’s what I said.
V: Okay Mondo,
whatever.
A: I’m just saying that
you probably tell people with that little disbelieving smile on your face. The
one that says, “I’m so happy to be receiving this
award/acknowledgement/opportunity but I’m not going to hold onto it too tight
because I’m sure you’re going to realize that I don’t deserve it and take it
away from me.” You did the same thing with Christopher.
V: I did not. I loved
Christopher.
A: Yes you did. You
loved him so much you didn’t know how to handle it, so you cheated on him at
first, then you treated him like shit and when he still wouldn’t go away you
finally started to treat him decently and love him the way you wanted to. I
wish you could see what the rest of us see.
V: I do too.
A: I’m not talking just
physical sight, dumbass. I mean I wish you could look at yourself and see why
the rest of us think you’re so amazing. I wish you could see why you touch
people, why people get upset at those who use you, who discard you, who
mistreat you. You bring out these feelings of protection in people.
V: Whatever.
A: I’m serious. Ask
Cherie. I bet she’ll agree with me. The biggest thing is that you have to start
believing things when they happen the first time. You have to start believing
the good things that people say about you the first time they say it because
one day you’re going to get an opportunity and they’re only going to say it
once and if you don’t believe them the first time they say it then you’ll miss
it.
V: Thank you Obi-Wan.
Whatever would I do without you?
A: Turn into a pillar
of salt and blow away I’m sure.
So now that I’m blind
my friends feel like they can offer all of this sage advice to me about my life
and circumstances. The kicker is, I’m actually listening now… at least a lot
more than I ever did before. And while being blind when I could see just a few weeks
ago is different, the actuality of losing my sight is not as difficult as I
might have imagined. I think that having those people who still see me as being
me, the ones who still tease with me, still talk to me and support me, who
aren’t afraid that it’s contagious… is amazing and made even more so because
now, in my blindness I can actually see how very supportive and caring those
people have always been. They are the ones who have always had my back and have
supported me from beginning to end, they are the ones who are helping me get
through this.
So thank you.
I am making my way
downtown today with Cherie. We are going to get my official name change
paperwork and then going to see my VA Vocational Rehabilitation counselor so I
can get all of this stuff together for school.
I actually smiled this
morning when I woke up. I’ve been waking up and crying when I realize that I’m
still blind, but this morning was the first time I woke up and smiled because
you know what? Things could be so much worse.
Another positive note: Elian, the first book chronologically
in my “The Marriage Groups” series (the prequel to my LiAW story Steamy) is at
over six thousand words according to my narrator. It is at six thousand nine
hundred and fifteen. When I lost my vision it was at three thousand. So I’m
back to writing and yes, it’s only about a thousand words a day or so, because
it’s frustrating me sometimes, but at least I’m writing.
At least I can still
write.
It could be so much
worse.
I encourage you all to
remember that as things happen in your life, whether they are craptastic or
easy as apple pie, look at what you can learn from your situation. See how the
lessons life is teaching you can actually improve your life and the lives of
others around you.
Have a good weekend
everyone.